Momma Does Things

One Mom. Diverse Interests. Unfiltered Stories. No Rules.

Navigating My Fear of Hysterectomy

In November last year, I experienced non-stop bleeding for 21 days. I felt drained, physically and emotionally. Yes, I know. I should have seen a doctor sooner, but I was so focused on my work that I used it as an excuse not to go because I dislike hospitals. I was at fault.

My hemoglobin levels dropped dangerously low, and despite receiving two units of blood during a transfusion, my levels barely rose to 104 g/L (normal levels for women are 121-151 g/L). I was admitted to the hospital, and the root causes were identified: adenomyosis and uterine fibroids.

During my hospital stay, my doctor performed a dilation and curettage (D&C) procedure to manage the bleeding temporarily. However, her primary recommendation was a hysterectomy. While this seemed like the clear path to end my suffering, I’m grappling with a deep fear of what it means to lose my uterus at 40 years old. The idea of entering menopause before I’m emotionally or mentally ready scares me, especially with all the potential side effects I’ve read about.

Understanding Hysterectomy and Its Implications

A hysterectomy, the surgical removal of the uterus, is a common treatment for conditions like adenomyosis and fibroids when other treatments fail or are not suitable. However, this procedure isn’t just about removing an organ. It comes with significant physical and emotional impacts, especially for someone my age.

Here are some of the potential side effects of a hysterectomy:

  • Early Menopause: If the ovaries are removed along with the uterus, menopause occurs immediately. Symptoms include hot flashes, mood swings, vaginal dryness, and an increased risk of osteoporosis and heart disease. Even if the ovaries are preserved, blood flow changes can sometimes lead to early menopause.

  • Hormonal Changes: A sudden drop in estrogen levels (if the ovaries are removed) can lead to profound hormonal changes, affecting mood, libido, and overall well-being.

  • Psychological Effects: Many women, myself included, associate the uterus with femininity and identity. The loss of this organ can lead to feelings of grief, anxiety, and even depression.

  • Physical Changes: After surgery, physical activity is limited. Some women report changes in their abdominal area and pelvic floor strength.

Exploring Alternative Treatments

While a hysterectomy is a definitive solution for conditions like adenomyosis and fibroids, I’m exploring other options before making such a life-altering decision. Here are some treatments I’ve researched:

  • Medications: Hormonal treatments, such as oral contraceptives or progestins, can help manage heavy bleeding and pain. Gonadotropin releasing hormone (GnRH) agonists temporarily shrink fibroids and reduce symptoms of adenomyosis.

  • Non-Surgical Interventions: Procedures like uterine artery embolization (UAE) can shrink fibroids by cutting off their blood supply. Magnetic resonance-guided focused ultrasound (MRgFUS) is another non-invasive option to target fibroids.

  • Lifestyle Changes: Anti-inflammatory diet, regular exercise, and stress management techniques may not cure the condition but can help alleviate some symptoms.

Seeking Support and a Second Opinion

Despite my fears, I know that my health must come first. I’ve decided to look for a new gynecologist who can give me a fresh perspective and a more tailored approach to my condition. I need someone who will not only address my physical health but also understand my emotional apprehensions about undergoing a hysterectomy.

This journey has been overwhelming, but I’m holding on to hope. I know that there are compassionate doctors out there. I need someone who can reassure me and help put to rest my fears.

If you’re going through something similar, know you are not alone. It’s okay to feel scared and uncertain. What’s important is to keep asking questions, seeking answers, and advocating for your well-being.